Cystic Fibrosis Ireland will host 65 Roses Day next Friday, which will raise funds and awareness of the condition - for more information see 65rosesday.ie.

It also coincides with the first anniversary of the agreement to provide the Orkambi drug to people with Cystic Fibrosis in Ireland.

CF is a hereditary, progressive illness which mainly affects the lungs. Orkambi has already proven to be a life-changing treatment for many of the 1,200 sufferers in this country.

We spoke to three people who have experienced its benefits - Jillian McNulty and Brian McCarroll, who were both part of the Orkambi clinical trial, and Claire Mooney, who has been on Orkambi since last year.

To catch the full chat press the play button on the image on the top of the screen