Cystic Fibrosis sufferers and their supporters have been protesting outside the Dail, calling for access to certain drugs.

CF sufferers say their lives have been transformed and even saved by Orkambi and Kalydeco.

But negotiations with pharmaceutical companies have so far failed to bring down their cost.

These friends and family members say their loved ones canÂ’t wait;

The C.F. Community protesting at the Dail #YesOrkambi pic.twitter.com/nJVMWA8Teo

— CF Ireland (@cf_ireland) March 1, 2017