A Cork mother, whose son has a rare genetic condition, has been announced as the Carer of the Year.
Brenda O’Connell-Barry's 4 year old son Fionn suffers from NACC1.
It’s a condition which means he requires 24 hour care from his Mother.
He also suffers from cerebral agitation and can scream for days with pain.
Brenda O’Connell-Barry from Cork has been announced as the Carer of the Year. She cares for her 4 year old son Fionn who has a rare genetic mutational condition. Really inspirational woman. pic.twitter.com/ysIjTT2IKB
— Stephanie Rohan (@StephGrogan3) November 23, 2018
Brenda says winning the award means the world to her family.
The Charleville woman said "It's huge - we do so much for him you get no thanks or recognition from anyone."
"We feel so isolated, so alone in caring for Fionn. We feel there's nowhere to turn."
"There's no support - any bit of support that we have gotten we have fought tooth and nail for."